Disclaimer: This blog is always going to be a DIY/home decor blog, but something big happened in our family this week and I know so many of you are praying for us and have encouraged us, so I want to share more of the story and give you an update. I’ll give updates now and then and you may see buttons on my blog for diabetes awareness and fund raisers to find a cure, etc., but the focus of my blog isn’t going to shift. Just an FYI.
So, this week has been about me getting it together. I planned to paint and make videos and work on the look book and some other fun stuff, but that’s going to have to wait a bit. On Monday, my youngest son, who is five, was diagnosed with Type 1 Diabetes. I made an appointment with our pediatrician after noticing that he was thirsty all the time and was urinating a lot. It got to the point where it was 4-5 times an hour! My mom mentioned that his symptoms were possible signs of diabetes and I should have it checked out. He seemed totally healthy otherwise, so I made an appointment for the following afternoon. At the appointment, they tested his urine and found high sugar levels, so they sent us immediately to the ER at Hershey Hospital. I felt pretty numb at that point. This is the kind of thing that happens to other people. People always rattle off symptoms of diseases when someone is sick…”it could be this”, “it might be that”, “I read here that in some cases”…but it never is, right? Not when it’s you. Not when it’s your kid. Well, in this case it was.
They offered to have an ambulance take us there, but I’m the sort who doesn’t like a fuss. Remember I drove myself to the ER when I was having heart attack/gall bladder attack symptoms?! (It turned out to be the latter and I had to have it removed a few days later.) So, not wanting to overreact, we went home, packed some bags (thankfully) and drove over an hour to Hershey.
Now, about halfway there, I realize I am in way over my head. I don’t know anything about diabetes except you have to get shots and you can’t eat a lot of sugar? Maybe? I have a hungry kid munching on pretzels in the back and is that okay? Will he have a seizure? Should I have just had them take us in an ambulance? Yeah…so it was a white-knuckle-are-you-okay-back-there drive the entire way.
At the hospital, they had us wait just like everyone else, so it can’t be too serious. After relaying the symptoms about three times, we were taken back to a room to figure out what was happening in his little body. I’ll tell you, the people at Hershey are awesome. When the nurse came in to insert the IV, a child specialist came with her bringing an iPad, toys, coloring books and all kinds of things to distract my son. It worked. He paid no attention to the nurse getting out the needles and swabbing his hand. She inserted the IV and he just looked startled, turned his head to her and said emphatically “Ow!” No crying at all and then he went back to playing. From the IV, they were able to rehydrate him and collect blood for the testing that followed.
They confirmed that he has Type 1 diabetes (T1D). They brought in a backpack with educational materials and a teddy bear for him, which he immediately named Hershey and has snuggled with ever since.
“Do you have any questions?”
Yes. All of them.
The pediatrician at the ER gave us some basic information and shared that his wife has T1D and she’s had two kids and lives a normal full life…with this one little exception. Through all of this, I wanted to be strong for my son. I didn’t want him to see me cry or fall apart. I’d get a little teary now and then, but I’d turn my head away or wait until he left the room. I also felt like it wasn’t okay to grieve. I know a few people with T1D and they are fine. He’s going to be fine. So, I shouldn’t cry about it.
Most of the evening and into the night was filled with the usual hospital stuff. Trying to find a comfortable position in plastic chairs. Trying to keep a five year old entertained when he has to sit in a bed connected to an IV. Jeff bringing me soup from Panera bread, since I hadn’t eaten lunch and was famished and I felt like I couldn’t leave the room. People coming in an out to collect this, test that, hook up another tube or give me more paperwork.
I was resigned to the fact that I was probably going to have to find a way to sleep in a plastic chair, but we were moved to a room in the Children’s Hospital around 1:00 am. We had to get all set up in the new room and meet the nurses there and figure out how to turn the lights off and get the sofa bed to fold down and get a rundown of the overnight plan. I finally crashed on the sofa bed and was out.
I woke up to a doctor gently saying, “Hello? Hello?” It was 6 am. Really?! was the first thought that popped into my head. I knew that I would have to be in training all day to learn how to take care of a diabetic kid and I knew it was going to be tough on less than 5 hours of okay sleep. When I’m tired, I get cranky and selfish, so I was thinking about what I was going to eat and how much I missed my bed at home and is there any way in the world I can get a quick shower, so I don’t feel gross.
The nurse was giving my son some graham crackers and orange juice, because his blood sugar was low. That woke me up and interrupted the little pity-party I was momentarily having for myself. Now, those of you who have very picky eaters know what a blessing it is to see your kid eating something he would’ve gagged at only the day before. My son doesn’t like to try things that are new or different. At all. Even different flavors of ice cream have him tightening his lips and crossing his arms. So, watching him obediently drink the orange juice and eat the crackers was such an amazing gift from God. I’m here. I’ve got this. I’m in this. I’m taking care of him.
He had a pretty good night sleep, so he was ready to walk the halls and look out the big windows and play with his “guys” and watch Veggie Tales on the iPad. Breakfast was another blessing when he ate scrambled eggs and loved the idea of chocolate pudding first thing in the morning. I realized I probably wouldn’t get breakfast, so I picked at his potatoes and the eggs he didn’t eat. I had also tucked some clementines in my bag before we left home, so I ate a couple of those. Jeff arrived and thankfully brought some soap with him, so I took a quick shower, changed clothes, put some makeup on and got myself feeling a bit more like me again, so I could face the day.
We were discharged and went to the pediatric endocrinologist for an appointment, training and a meeting with a nutritionist. It was sort of like having a new born, except that’s something you can plan for ahead of time! With diabetes, we had to learn how to take care of him in a one day crash course, so we could take him home and care for him properly.
I thought I knew a little bit about diabetes, but I really didn’t know much at all. I learned so much on Tuesday about why he has it and why he’ll depend on insulin for the rest of his life. There is no cure for T1D (not yet, anyway.) His body simply can’t produce insulin any more and there’s nothing we could’ve done to prevent it and there’s nothing he can do to make more beta cells. So, Jeff and I learned all about counting carbs, checking blood sugar levels, administering insulin and how to treat hypoglycemia.
When we were finished, we picked up a huge bag from the pharmacy and finally were able to go home. When we got there, I felt like I had been hit by a truck. I hadn’t eaten a meal all day. I was going on a little over 4 hours of light sleep. I was drained from keeping a cork in my emotions for two days. My mom picked up some dinner and brought our other son home to meet us. I started unpacking the prescriptions and getting things all set up for his first blood sugar check and dose of insulin at home. As I got to the bottom of the bag, I realized something was missing. In the rush of leaving the office, the nurse, who was amazing all day, forgot to give us the pen to administer the insulin.
That pushed the emotional cork out. I started sobbing…sobbing on the phone to the call-a-nurse, to a friend who has T1D and to a poor local pharmacist who had no idea when he answered the phone that he was going to have to deal with a sobbing, overly tired mom who’s just trying to figure everything out. We did find out that we had everything we needed to improvise until we receive the pens in the mail.
For most of the day, I had been avoiding reading the comments left on my blog in response to my post sharing the diagnosis. I was just too emotional to read them. I would start and one would be so touching and sweet and it would make me cry. That wasn’t helping with the whole corked emotions plan. As things were winding down, I finally read a few and several moms of kids with T1D gave me permission to grieve and I really need that. So, after the boys were in bed and my mom left, I sobbed. I knew he could still have a wonderful full, healthy life. I knew he can still play sports and do well in school and thrive in so many ways. I knew all of that, but it’s still scary and intimidating and there’s still a sense of loss. A sense that life is always going to be different.
But even in that low, I could see some amazing things. No one can prepare for an T1D diagnosis. It’s something that happens on a normal day, whether it’s convenient or not.
But I can clearly see that God has been preparing us…
- I had my gallbladder removed two years ago and, as a result, I totally changed the way I eat and the way I feed my family. I already have the food scale and measuring cups and I already know how to read labels and I already keep a food journal for myself, so keeping one for him doesn’t seem like such a big deal. We had already cut out most of the junky food from his diet.
- My parents moved up here about 18 months ago to help with my business and the boys. It would be so overwhelming if they weren’t here to help us with this.
- Jeff went part time just two weeks ago, but retained all of his health benefits.
- Since I own my own business, I can be as flexible as I need to be in order to meet my son’s needs.
- He has placed people in our lives from blog readers who are mom’s of T1D five year olds who have connected with me to people in our church who have T1D and have made themselves available if we need help or have questions.
There have already been so many blessings and answers to prayers…
- Our son has been very accepting of the blood sugar monitoring and doses of insulin. Yesterday, he even said “This doesn’t hurt at all. I’m used to it already.” He’s also being an active participant and wanted to put his meter together and watch as we give the insulin. He’s been a trooper.
- He is a very picky eater, as I mentioned, and he’s now been trying new foods and has been receptive to the eating schedule and limitations on carbs. In most cases, it’s meant he has to eat more at meals than he usually does and snack less. He thrives on schedules, so I think he even enjoys it! (I’m not a big schedule person, so it’s a challenge for me and my iPhone alarms are my best friend.)
- In short, he’s just doing great.
We still have a lot to learn and a lot to figure out and we still covet your prayers, but it is manageable. Jeff and I were talking about it yesterday and we have a peace and a sense that we may look back on this diagnosis as a blessing in disguise. It’s brought us and our family closer together. It’s forcing us to be less selfish and even more aware of our kids and what they need from us. It’s brought us the prayers of hundreds, maybe even thousands of people. It’s made us count our blessings.
And those are all good things, aren’t they?
I know there will be dark days and times when it’s hard to see the good in all of it. But for now, we’re running on grace.
And that can take us as far as we need to go.
I started reading, got a few lines in, scanned the rest for the words type 1 diabetes and started crying. It’s been almost 4 years since my daughter was diagnosed. Most days I do just fine, and then I read of another child and their family getting the news and I lose it all over again. God bless you all! I’ll be keeping you in my prayers.
My sister got type 1 Diabetes when she was 11. She is now a 44 year old Registered Dietitian who and she has an insulin pump which regulates her sugar better than the shots. He will be fine just have to learn as much as possible about the disease and get with a Registered Dietitian to help you plan meals and find out what is best to eat. you can do this. It is definitely a life change I remember my mom wouldn’t let anyone have sweets in the house and she started sweetening everything with equal when I was 8. exercise is really important . My sister has done so well because she has always put this first in her life.
I’m so sorry you are having to go through all of this. I have 2 nephews (brothers) with T1D. They are 15 and 18 and both doing really well. I’ll be keeping you all in my prayers!!
Friend,
Go to Ann Voscamp’s faceboook page yeserday I think.
and see her most wonderful “DO NOT BE AFRAID”
photograph; surrounded by all the scripture that
God inspired. Lots of repeat verses on this
because we need lots of reminding.
I know i do
Praying and loving you and yours,
Patti
Sending huge hugs of love, wrapped up in His Love, for your family. Went through a few tissues myself, reading this post. You are a strong woman of God Marian, and He will guide you through this new journey.
All my best,
Kim
I won’t say be thankful it isn’t worse – Isn’t that what we all say when we don’t no what else could be helpful! From a Mom/Grandma’s point it’s so hard and hurts when it is you kid. I will pray for you – will call him lucky because he has you and Jeff to keep him on track. I have struggled much in the past 3 yrs. with medical issues that continue – job loss and loss of a best friend to cancer – I sobbed and sobbed some more – When I clinch at my shot each time I think of your little man–
God is so good! He gives us Grace to see us through today and then tomorrow He does the same! So glad to hear things are going well! You will do a wonderful job taking care of your son! Michelle
Praying for you and yours. God is in control, and He is ALWAYS good.
Us moms (and dads, and wives, and girlfriends, etc…) are so great at the “emotional corking”, it’s the uncorking that we need to work on.
Know it is OK to sob, it’s OK to sob so hard your bed shakes, your nose gets snotty and red, you are floating in a sea of used tissues and your breathing sounds like the Little Engine that Could. We all need that, and we all do that, and it is OK.
Thanks for being brave. I don’t mean brave because you “corked” but brave by sharing with us, so that each and every one of us can be brave with you. When it gets dark (cause it will) know we are all little lights shining out here in the blog ether for you and your sweet family.
When I first read your original post about your son, I cried. After reading this post I think how lucky your little boy is, to be surrounded by such a loving, amazing family. And your grace will carry you through..God Bless…
You got this! And God’s got you in his hands. Diabetes on both sides of my family as well. Types 1 and 2. You can do it. Lean on your team, your support system. Don’t try to do it alone.
I just want to give a you a big hug, Marian.
This is a hard thing, yet in the midst it really doe help to realize God is good all the time.
It’s wonderful you can look back and see his hand actively at work. I’m reminded of Romans 8:28. God really does work all things together for the good of those who love him. Sounds trite until you realize you’re walking through a tough time and he has been doing just that.
Whenever a post gets delivered to my mailbox, I’ll trust that God will remind me to shoot a prayer off on your behalf.
[hugs]
Diane
A friend of mine pointed me here. I went through the same thing as you–over Thanksgiving this year with our 11-year-old. I want you to know that you are in my prayers, because I know exactly the roller-coaster of feelings that the parent of a newly-diabetic child is experiencing.
Please know that if you want to vent or commiserate or WHATEVER, you can email me at cookbookmom AT gmail DOT com. God bless you and your family, and may He put in your path all the people you need to help you through this.
Marian, I remember the story of the tapestry (appropriate because you and I are both artists). Looking from the right side you see a beautiful design but the back shows all of the weaving necessary to make it His work. What a comfort to know your family is in the palm of His hand.
Dealing with MS for the last 25 years, makes me even more aware that His mercies are new every morning because HE is faithful. Cling to that promise.
Lots of love,
Melodye
After I read this post I clicked on a link to one of your past posts. I read the post and admired all the photos of the Empire Dresser. The last picture showcased one of your boxwood wreaths centered on a chalkboard. You had written, “When your heart is overwhelmed…….”. 🙂
It’s ok not to keep the cork in and let it all out and just blubber. It’s ok. I think we have this idea as moms that we have to hold it together for everyone else, but sometimes that gets unreasonable, unbearable, and it all comes washing out in a big wave and it’s fine. It’s really just fine. My daughter had MRSA when she was one. She was in the hospital for three days. Same thing you described – distractions to get an IV in, chicken nuggets in bed, nurses who are angels. There is nothing in the mom handbook about how to handle a kid in the hospital. I held it together for about two days and then lost it. I felt terrible that I couldn’t hold it in, and yet it was better that I had let it out. You are strong. You can do this. I love that you are looking at the bright side and feeling grace. Blessings to you and your family.
I do not have a child with diabetes, but I have a son who has Autism. I was devastated by the diagnosis and still have moments of profound sadness for what might have been. My son is almost 15. He is amazing, high functioning, very funny and completely lovable. A parent in my support group told me to grieve for what I had hoped for and to embrace what I have. I live by those words every day.
I am so glad you continue to share this with us. I just read your post yesterday about you finding out about your son having Type 1 Diabetes. I had no doubt at all that you and Jeff would do what had to be done. It is great that you let it out…I cried myself reading your post today! Your son is amazing..but then he has two great influences in his life teaching him! It is unreal how all the things happening in your life and the choices y’all made that was leading to getting you prepared for this life changing event in your families lives. God Bless!
I have said many times my son’s diagnosis was a blessing. I have no idea what kind of mother I may have been if I didn’t HAVE to be attentive. Would I have been his best friend? The cool mom, who isn’t really cool in the end? Would I have cared AS MUCH about the school system we were in? I have met so many people because of his diagnosis that I adore. His T1D has changed my life for the good and actually opened doors. Do I hate the everyday worry? Yes. Will you the first time your son goes off to a friends house (or second or third) yes, you will. But you’ll be amazed how in tune to BOTH your children you will end up being. You may also be amazed at what a schedule can do for the whole family ;).
I am glad you grieved. Please allow yourself to grieve when needed. It has been 17 years and every couple years something happens and it triggers all kinds of emotions and I have to allow myself to be sad. To be mad. And then, I can be happy again.
Your son and family remain in my prayers (I am confident God knows who Miss Mustard Seed’s son is).
And yes, you can do this.
You have got this! God is with you, and in his way (like you said) has prepared you for this. Can you imagine what this would be like if you had never had the gall bladder attach, and changing your eating…blessings, thank God!
Marion, you are a wonderful person and your blog is always inspiring to all of us. You take time for you and don’t worry about grieving or whatever you need to do. Our Father is always in control even when we are overwhelmed. You are in my prayers.
Changes are difficult and disrupting and come with finding ‘new normals.’ Don’t forget the other son in the midst of it all. 🙂
My younger daughter had what I guess you could call a “birth defect” that we have had to monitor for several years, that she may or may not “grow out of”. Still, it’s hard to hear that your child isn’t born perfect, and to accept that their body may always have something wrong with it, but if you think about it, whose body is 100% perfect? I mean, we always would like something to look different or to be skinnier, to have a different hair color, etc. The hardest part was that I waited over 24 hrs to take her to the doctor thinking she just had a virus, when it turns out, that waiting could have caused permanent kidney damage…the guilt, and thankfully, she doesn’t have damage. I would have never waited to take her to the doctor, had I even known about such a condition. The bottom line is, we were able to have those kids, which is more than so many are able to do, and it just gives us another reason to love them and realize how special they are. I’m sure once you get the routine down, everything will be fine. I know several kids with it who play sports and are very active with it, and they are just monitored a little more closely. It will all work out, and he will be just the perfect way that God intended him to be. ;o) But, I’m sure you will never forget that life defining day, as I will never forget mine.
http://www.npr.org/templates/story/story.php?storyId=263316265
I heard this on NPR this morning. Wouldn’t it be wonderful if some day in the future your son can use this technology? Hang in there! 🙂
HALLELUJAH!!! Thank you for giving us such a detailed and positive update! It was so wonderful to read every word. You sound as if you are all on the right track and with God guiding you, how could you not be? I do love the simple words the hospital gave you (#1-3 in photo). Simple, bottom line that it will all be OK. Take care, get some good sleep, and keep on. I know the exhausted, ready to lose it moments. I would have been a mess when I saw no pen also. Life is good, God is good, and we are listening and praying for you and your family.
This post is a real blessing for me today, and I thank you for that. I have had your family on my mind all week. While I know that our God certainly did not “do” this to your son, I rejoice with you in all the ways you are finding to be thankful to Him for His loving care. There’s something in Genesis…”you meant it for evil, but God meant it for good”. Thanks be to God for his indescribable gifts! Grace abounds.
Amen!! Bless you all and thank you for keeping it real!!
Love the picture of Jeff and your son with the Bible open on the hospital bed. Praying!
Hang in there. It’s going to be ok. We are sending you strength and prayers and its ok to cry let go of the stress don’t hold it in and each day will get better.
Oh Marian, it’s hard to type through my OWN tears, reading your update. I can’t imagine the shockwaves that have gone through your life since you got that diagnosis! Thankfully you are able to be around and available and you seem to have an amazing support system already in place. What a great kid, too, to be so accepting. He must feel so secure and loved, not to be scared or complain. Wishing you all the best in this journey, funny how a curve ball kind of just makes you take a deep breathe and say, OK what next?? You are up for it and you will all do great!!
Marian,
As I said the other day, I have been where you are and while it can be overwhelming and stressful, I too believe it has in many ways been a blessing in my life. My daughters diagnosis has brought us closer in many ways and made me realize once again how fragile life is. You will learn so much in the coming months and in no time you will be able to recite the carb count on more food than you could possibly imagine. If I may give you one piece of advise that has been invaluable to me in this journey….when faced with the question of weather or not to let your child do something/go somewhere, ask yourself this “would I let him if he didn’t have diabetes” and what ever the answer is….do it…it will be HARD and SCARY and require much planning and thought on your part but do it anyway….it will make your child feel as if he can do anything and that is priceless. Do not make your life about diabetes make diabetes fit into your life. Also get him a medical ID bracelet soon and let him get in the habit of never taking it off…the sooner the better, they have lots of cool ones for kids available. Last thing….many people will give advice about food and pumps vs shots and middle of the night checks and the list goes on and on and D Moms have lots of GREAT information but only take medical advice from your Endo until you have had time to get your feet firmly planted in the Diabetes world and have a comfortable understanding of your child’s Diabetes….every T1 is different and only you and your Endo know what is best for your child. Keeping you and your family in my thoughts.
Karin
Marian, I’m thinking of you and your son. Hope he’s feeling better with his treatment soon. x
When I read the first post on your son, I wanted to reach out to help. I read the others post and realized many of them had much more to offer than I did, websites, blogs, real life stories. So I prayed for you and your family. Today I still feel the need to share this with you.
I know now it is hard to see the blessing in all of this. I good friend of mine, had her 20 yr old son on a missions trip, playing basketball, in Guatemala. He became so sick, they would not let him fly home with the group and he was hospitalized and diagnosed with T1D. I can’t imagine how my friend felt with her son in the hospital in another country and no way to get there.
He tells the story of having one of the only English speaking drs. at the hospital who told him God was looking out for him. Based on his symptoms they told him he would have died on the plane had he not gone to the ER.
Josh now uses this story and his journey with T1D in his testimony and his missions with other young adults playing sports.
Here is his story. It would be great for your whole family to watch. http://www.youtube.com/watch?v=Shl-CXqZGSM
Though I have a few mantras, my go to is…things happen for a reason. Marian, you indeed were led to this place and you are shining. You have embraced the moment and have prepared for it, indeed! Thank you for sharing this…you will no doubt continue for years and years to meet people who you have touched, now in a totally and un-decor oriented way.God continues to open doors for you and you step through, a woman of great faith…head up, chin out, heart open. Thank you for being you! Once again you inspire people in ways you cannot possibly imagine!
You, Jeff and the boys have been on my mind and in my prayers all week. Your post is a testament that…PRAYER WORKS!
Marian you are entitled to cry. That is your child and as a mother we are used to fixing everything and you can’t fix this. Will your son be okay, yes he will but you can still cry. They are doing a lot of things with pancreas transplants where you will not be diabetic anymore. Take a deep breath and love that little boy. You and your family are in my prayers.
Marian,
I am so sorry that you are having to deal with this. It can’t be easy and it isn’t what you would have wanted for your son. You have already made an amazing amount of progress. It will be ok, there is just a big learning curve!
Prayers to your family
Wow! Your amazing and I am glad you are still trying to find the ‘normal’ in amongst the storm of this new stranger that has entered your life! Your honesty makes it all the more endearing!
Just typing my name so you will know that you are still in my prayers. Remembering yours and Jeff’s prayer for your boys. Holding fast to God’s promise that “ALL things work to the good….” It is a wonderful thing to fill your tank with Grace, just what you need to keep running. It goes on even when you can’t. Much love and prayers! Jan
My heart goes out to you and your family and dealing with this new challenge in your lives, but we know that God has gone before you to prepare you for this journey you now find yourselves in and He is more than able to sustain and guide you through it all. Don’t feel it is weak to cry or mourn over what might have been, it is human and your emotions need to come out so the healing and acceptance can begin. It sounds like you son has already been given a measure of grace to deal with it in that he has been so accepting of changes in diet and the injections…..that is a lot for a 5 year old to grasp!! You are going to be a wonderful mom to your little boy and your family will be a team in dealing with the diabetes. The choices and options with food are so much greater today than they were in years past and the more prevalent emphasis on healthy eating will also help him feel that he is doing normal things. Thank you for sharing your heart, it is clear you are a wonderful mom, Marian. I will pray for all of you. Blessings, Linda
Thanks for sharing! You will get through this and it will get easier. It will just become your normal.
My son was diagnosed w/ asthma @ 10 wks. old. Unlike you, at least I kinda had a heads up, as I have asthma, so I knew the chances of him having it would be high, but it’s still hard seeing a a less than 10 wk. old struggling to breath. He is now 3 yrs old and it is still scary when he has an attack, as thoughts just go through your head. I wish I didn’t have to give him daily meds, and additional meds during atttacks, but it is what it is. Very early on I realized how it could be so much worse, and some(many) have it far worse than him. So at the end of the day I’m grateful he just has asthma.
Keep your head high and remember that you WILL get through this. Obstacles are tough in the beginning, but they’re only obstacle for as long as you make them obstacles. This will just become a part of your everyday life and after the initial shock of it all, this will just become your everyday life.
marian, i’m right there with you. i feel the mix of emotions and the knowing that His grace will be sufficient. for my son, it was a seizure disorder, but from what you have described, it really does sound familiar. and you already know this, but as humans, we have this amazing (supernatural even!) ability to adapt. and quickly. it’s just how we’re wired. so your little one before long will adjust; the whole family will, and God may very well choose to use you guys and diabetesfor His glory. love to you.
michele
I’m just catching up, I am so sorry. This must be so hard for you for him for the whole family! My son spent a week in ICU last year so I know this feeling, it tugs at you, you just want to take it all away for your little guy. I will pray for him, pray for strength, you will get through this.
Hugs
Kristin
I’m not going to leave another long message since I did yesterday. Just wanted to say what a cute little fellow you have. So glad that he has such a loving support system.
I am praying for him and you. As I stated before, you are his mommy. So, he will be fine. You are strong. Cry when you need to, then pick yourself up and do what you have to do. Then when you need to cry do so, and then carry on again. Up and down, up and down. You are human. Bless you.
Just reading this now Marian.
Many years ago my husband and I went through a life changing event.I won’t go into details.But when we were going through this life changing event,our faith helped us get through it.Without our faith I don’t know what we would have done.
I know God is watching over you,your son and your family.
Keeping you all in our prayers.
~Anne
I have a 5 year old and hearing of your sons diagnosis just made my heart go out to you….praying for you and your family. And I just really loved reading your post, through tears and smiles. You are an inspiration!
It sounds like you are all doing amazing! When I found out my son was diagnosed with several food allergies, it hit me like a ton of bricks and I was in shock-my best friend said “Take the time you need to process it all….then go put on your kick butt panties and get out there and do what you need to do!”. Boy how right she was…we don’t let it rule our life or get get us down or talk about it constantly, we just deal with it and move on and live normally. You have many blessings in your life and will be just fine 🙂
As I was reading your post I couldn’t help but think how blessed your little guy is to have such loving, competent parents to navigate him through this! I can just imagine how difficult it would be for some kids from a broken home going back and forth between parents or parents not competent enough to learn how to manage this illness–so many parents these days dealing with their own issues of addiction, etc. I know this diagnosis is a shock, but I agree with you that good WILL come from this and I truly believe we will see a cure for this disease! Prayers going up!
Stick Horse Cowgirl V
Marian, You are so gifted in so many ways. While your readers are touching your hearts, you are touching ours. My thoughts and prayers are with you. There’s that old saying that this, too, shall pass.
I live in Chi town and you may not know that Cub Hall of Famer Ron Santo was also a diabetic. He had a successful baseball career and later the radio voice of the Cubs. He was a staunch supporter of JDRF – a wonderful organization. Ron was living proof that his life was not going to stop due to this condition, and it didn’t.
You are a wonderful parent and your son is so lucky!
It is so great that you started eating more healthy a while back. My friend’s daughter was diagnosed when she was 12. By 22 she was a vegetarian and a few years later she was on the raw food diet. She has remained on that and now is 31. Since eating that way, her blood sugar is the most stable that it has been.
You know that saying “We can do hard things”. Well, you can and you will! Blessings to your family and big hugs to you. As a mom, we always feel like failures when something is wrong with our children. Even if it was totally out of our control!
Jenny
Dear sister…When I read your post, this scripture came to mind…God Bless
“The Lord bless you
and keep you;
the Lord make his face shine on you
and be gracious to you;
the Lord turn his face toward you
and give you peace.”’
Numbers 6:24-26
I Don’t have a scripture to quote, but a simple message “Never lose you’re childish enthusiasm…It’s the most important thing.” (Under the Tuscan Sun)..meaning allow yourself to laugh when it’s not funny, to cry when no one else is, to hug when nobody’s expecting it, to scream when no one expects you to. You are clearly a strong woman, but allowing your feelings to ‘let it rip’ once in awhile will only enable you to regain strength, focus, and drive for what you ultimately do best (beyond your obvious talents)…being a terrific mother. God Bless.
Thank you for authentically living out this challenge in front of us. Your faith and courage are so inspiring!
Marian,
I will continue to pray for you and your family as you learn your ‘new normal’. Thank you for sharing such a personal part of your life with us. Like your decorating, this is also inspirational! GOD IS SO GOOD!! HE always prepares us for the future He knows is coming, whether we recognize it or not. I am thankful that you recognize His goodness and love for you and your family.
Don’t ever feel like you have to explain to us why you are sharing whatever is on your heart to share. This blog is a “diary” of your life of decorating but as life goes, other events will sometimes take precedence over the general direction of things.
Lean on Him as I know you always do. And lean on us for encouragement when ever you feel you need it.
Your sister in Christ,
Karen
Marian, please “uncork” anytime that you need to. Studies show that stress hormones are secreted in tears. So allow your body to work the way that God designed it to work. If you’re healthy, you’ll have far more to offer your son as he rises to his new challenges. Prayers and hugs to you and your family. You have certainly been a blessing to me.
Thanks so much for sharing, we have been praying for you and Calvin Marshall was so good at our Mission Board meeting. We hardly knew he was there. Kept himself busy the whole time. God bless.
Blessings to your sweet little boy and you, and the rest of your family.
We’ve been through a similar experience with our three year old almost 10 years ago. It was leukemia but I can relate to so much of what you wrote that it made me cry even after all this time. God is so good. He *will* bless you and your family in this. It made us stronger as a family unit and taught us His grace really is sufficient. How can you ever know this until you’ve had no choice but to lean on it? I will pray for your son and of course your family. By the way, that three year old is now almost 13 and a daily reminder of the lessons we learned. Love to you. You’re gonna do great with this.
Sending love to you and to your son.
I was thinking today that I started following your blog because I liked your style, but in reality, God helped me find you. I have experienced the same diagnosis with an 18 year old. It is scary, it’s overwhelming , and for now it will fill every thought of every waking moment. I can tell you it gets better. Life will find its new normal. You will pray endlessly for a cure and for the health of your son. I will pray for your family. You are not alone. Ann
I know it’s overwhelming. i know that days will be hard. I know that there are going to be times when you cry and want this to go away. My son was diagnosed at 15 months old. He is 23 years old and getting ready for his 2nd pump. Things have come so far during that time. JDRF has been a great source of support for us. God bless you and know that we are all praying for you and send you and your son hugs and love.
praying for you and your family. God has a way of preparing us for everything. Blessings always!
Information and education are power. Faith is power. Love is power. Taking care of yourself is power with rest and time with your husband. You are a very strong and powerful woman full of compassion and love. Go boldly forth and you and your family will conqour. Many blessings for youall in this journey.
Dear Marian, thank you for sharing with us, I know you must be emotionally drained but you are leaning on the right ONE, Jesus. You’re right He knew about all of it and was setting every thing in place ahead of time. Just like you I’m learning all about this diabetes thing, as my husband got diagnosed the same day as your little guy was. Your little guy sounds like a little hero to me, he’s taking it in stride and kind of matter of factly it sounds, like ok, I have this, I’ll do what I need to, now lets get on with the play station game lol.
hugs to you and your family. its going to be okay. 🙂
Many prayers for your little guy and your family. As a mom of two special needs kids, I truly believe the most painful thing in the world is hearing that there is something wrong with your child and there is nothing you can do to fix it. But I have seen first hand how God can turn a painful situation into a beautiful blessing!
Our six year old was diagnosed on December 19, 1995. She is now a 24yo RN. She excelled in sports, going to state level in two. She graduated 7/440 and won numerous scholarships. She has climbed mountains and traveled the world. In fact, she is headed to Israel in March on a medical mission trip!. But, I will be honest–it has been a longer road with the diabetes. It took more effort on her part and ours. Though it is manageable (to a point) it IS a life changing diagnosis. I say “to a point” because you will soon discover that blood sugars sometimes have a mind of their own. Many dia-moms and dads beat themselves up when tight control is hard to maintain. I think that’s why God allowed the “honeymoon” period; His Grace allowing us to adjust before numbers become more erratic with normal life: sports, illness, puberty, and sometimes no logical, traceable reason. Like you, I saw plainly how we were prepared for this journey. One step at at time. Even so, the life change was real. And grief followed. Please allow yourself to grieve. I have likened it unto a death, experiencing different stages. If I can offer you some advice from this side, consider getting your son plugged into a camp program for T1Ds as soon as he is old enough (our dd went for years and is still a counselor/medic), do not pressure him for perfect numbers (they are JUST numbers for making adjustments), expect him to “sneak” things behind your back and use the moment to reassure him he does not have to lie because you will help him adjust his insulin for it, learn quickly how to ignore stupid remarks and questions because you will hear more than you can imagine, avoid the temptation to do it all for him and teach him along the way so his transition into adulthood will be easier (ask him questions like how much of this is a carb or can you press the button yourself?, increasing responsibility with age), avoid the temptation to “use diabetes as an excuse” (even when it is), inquire about insulin pump therapy as soon as possible (if you decide to try it and your doctor is against it–find a new doctor. We made this mistake and didn’t get one until age 14!), research the newest technologies and do not depend on the dr/educator to know or recommend them (sometimes they get kickbacks), and speaking of new technologies: the continuous glucose monitor has been the best diabetes product we invested in (in fact, she just got a different brand than we began with and has been astounded at how much more accurate it has been!) On that note, I understand their is a product you can keep by your bed to monitor nighttime blood sugars now–this would have saved my health, too many years with little sleep has taken a toll on me. Our dd had/has hypoglycemia unawareness while she sleeps, which means we checked her at least once, if not more every night. In short, I would have given most anything for that device!!! One last thing, if we had to do it again, we would definitely seek out a Christian counselor familiar with children carrying such a heavy load. I remember thinking “We’ve got this! We are a Christian family. We have a large tight-knit family and huge circle of friends. We are educated and have a strong foundation. We don’t need counseling.” But, when the moment hit that we needed it, it didn’t happen because our burgeoning adult was resistant. If a counselor had been her norm, I feel the situation would have healed much more quickly. In fact, I think her siblings would have benefited, too, because they spent a considerable amount of time waiting on blood sugars to come up or watching their sister have a “treat” when there wasn’t necessarily one for them, and there were a few moments when jealousy has tried to rear its ugly head–even years later an accusation or two has popped up. Take this advice with a grain of salt; each family is different. I’m confident the Lord will lead you in finding what works for yours. There have been so many advances in diabetes care, even since 1995. Count yourself blessed to have so many choices. We remain in prayer for a cure with you. Hugs to you, Mom! You are held firmly in God’s grip!!! PS Here is a book that I wish I had had when dd was still a child: https://www.loveandlogic.com/p-330-parenting-children-with-health-issues.aspx
cturner, I agree whole heartedly with every word you wrote. Counseling and including the other children is very important. Lessons, I wish I would have known sooner.
First I want to say that I am so touched by the way you all have taken all of this…God is with you at all times! I know a lot about type 2 diabetes with my husband and his father and my step dad. I know type 1 is way different and the eating requires a little more than what my husband needs. I recommend a diabetic class…it opens your eyes to many things and how to keep the peaks of the fires level though out the day with meals as they explained to us. You’ll be amazed at how much you’ll learn and how to be able to help others with this. That’s how God works…always able to share our battles with others and how we got through them just like you’ve been blessed with others that have been down this road that are in your life. It is a big thing too to be able to find the silver lining instead of counting our woes…which is fine as long as we don’t let it hold us back or hinder us. Crying is a good release so let them flow when you feel the need. I am a strong person but I need to cry every now and then because sometimes I feel like I am about to crumble…I always feel better after I cry because I really cry out to God then. It’s a sign of humbleness and we all know how God wants us to be humble. God bless you and your family and I pray that God gives wisdom, peace and good health to you all!
Hello, I have never commented on your blog before but I had to now. My first born was diagnosed with Type 1 when he was 17 months old. I have been where you are right now, worried about my son, my family and my other children (as they came along). My son is now 16, makes honour roll in school, has a wonderful girlfriend, a part time job, and is an all around great kid. I won’t tell you it is going to be easy (it won’t) but besides all the difficulties diabetes has brought to our lives it has had its silver lining too. I believe that my son has become the amazing person he is in part because of all the things he has experienced with his diabetes. I wish I could do or say something to make your journey easier, know you are in my thoughts. All my best to you and your family!
Bless y’all’s hearts! I remember when my daughter was 5 and diagnosed with asthma. It’s ok to cry and even mourn about diagnoses. I believe it’s part of the process. God will get your through this! My daughter is 19 and a sophomore in college on academic scholarship. you all will be ok. You have already come so far. Prayers coming your way! . God bless you all!!!
I am glad you have found comfort.
God answers prayer, this I know!
Marian,
Just today Goggle, Inc. announced it is in the developmental stages of testing a new method for diabetics to read their blood sugar levels through a special type of contact lenses. These contact lenses contain a special chip that read your blood glucose through the tear ducts in your eyes. This will eliminate the need for diabetics to prick their fingers several times a day to draw blood and get their sugar reading. While it is estimated that this device is probably at least five years away from hitting the market it will hopefully be a great tool in helping diabetics manage easier.
Just by reading your post today, its apparent that the Lord has already placed your son and your family in great hands and provided you with much support and help. In the meantime, we will continue to pray for a cure that will end this disease. My father in law has lived with Type II diabetes for many years now so I have seen first hand his challenges.
Sending prayers up for you and your sweet little trooper!! God will take care of all of you, and it’s okay to cry!
Your truly an inspiring person Marian. Remembering your family as you learn the ropes of your new journey. Lots of prayers and thoughts sent your way.
Long time reader, sending encouragement! My sister was diagnosed with T1D at 11. We all supported her and as a family adjusted our diet to accommodate her as much as we could. I still feel like it is part of my journey. Twenty years later and she is a thriving, beautiful mother of 3. Actually she’s right in your neck of the woods. If you ever need another great resource, I’m serious, she’d be a great person ask questions. At least I can feel like I made an offering from across the country. I can echo other comments and agree that technology has come so very far! It can all seem so over whelming at the start but hang in there! It will get easier!! Blessings to your family!!
I am so sorry you are dealing with this issue of diabetes. Especially in your young son. You will develop a new normal that you will embrace. You will be in my thoughts and prayers as you work through this trial that will affect your whole family. He’s a lucky boy to have you and your husband beside him. As you have felt and knowledged, God is with you and will inspire you to know the way to train the family best to support your sweet son. He will also give you peace. A peace that no one will be able to offer. Lean on Him and He will give you the direction you need as well as a positive attitude toward this disease.
My support and friendship will be with you always.
Melody
Years ago I had a 4th grade student who was diagnosed with T1D. Before he came back into the classroom i met with him and his parents to learn what we needed to do. With his consent, he was by nature a very shy child, we decided to bring the class in on what was happening and he was able to choose a classroom buddy. The buddy’s job was to partner with him whenever possible, lunch, playground, etc. He/she was to respond to any symptoms the boy felt and expressed or he observed. We all became very capable of noticing any changes in his demeanor/person. He knew all he had to do was nod and/or tell me he was enroute to the nurse and his buddy or someone else available would walk with him.
The natural curiosity, humanity, kindness, and sense of participation with the other students made this an easy transformation for him as he had a halting start adapting to his new way of life. As always, with everyone – the truth always works and that’s what we shared. Best of luck. BTW, the year ended well for the boy and his new friends – he became stronger and much more sure of himself.
Dear Marian,
I’ve had you in my thoughts since first reading of your son’s diagnosis. Like you I am the mother of two sons and like you, my youngest son was diagnosed with Type 1 diabetes. He was also diagnosed with Celiac. This was 18 months ago. Unlike you, my son was 30 when he was diagnosed. Prior to these diagnoses he and his wife spent several years trying to conceive. Both were tested and they learned he has a sperm count so low as to be considered sterile.
While my son is a grown man, a mother’s grief is not diminished by age. But with time and effort the grieving stops, life resumes and happiness returns. I am now a grandmother.
Your son is blessed with amazing parents and a loving, supportive extended family. He is also blessed by your prayers and your faith. I will keep you in my prayers. May God bless you and yours.
Many thoughts and prayers sending your way.
Reading this blog post brought tears to my eyes. I’ve been in this place and know exactly what you are going through. My daughter (she turns 5 tomorrow) was diagnosed with Type 1 when she was 23 months old. It’s been a challenge, but has also brought us closer as a family and given us renewed faith in God. I’d like to reach out to you if you need advice. Raising a Type 1 is challenging and stressful, and I’d love to offer help, advice or resources. You can email me or contact me via Facebook under Leslie Kinder Mannikko. I have also started a blog about our journey if you’d like to check it out. http://type1awesome.blogspot.com/ Much Prayers and blessing to you and your family.
Dear Marian,
Prayers and love from India.
God will give you and the little fellow the strength that is required… Trust in Him.
Sona
Marian, thank you for sharing your personal journey with us. You and your family have such great attitudes, I know you’ll all do great. I’m praying that your son continues to adjust to the changes as well as it seems he has so far. How wonderful that your folks live nearby and can help out. Praising God for his many blessings!
Thoughts and prayers for your Son and your family. The Lord is there with you just lean on him and he will see you through this. Your Son will adjust to this quickly and so will the rest of the family. Thank GOD that there is treatment for this and he will live a full life.
I’m really not into this bogging but my wife shared your story with our family and we are praying for you. We are very touched by your story as we had our youngest three children diagnosed with type one in three years. Each one has been a real adjustment but our oldest one to be diagnosed wrote a post on a blog he created wich I often think of. The story is about diabetic life compared to a snow globe. It seemed at times all you see is the snow storm but then it all settles and you can see the beauty. Diabetic challenges seem to knock at our door regularly, sometimes daily at times even hourly the snow globe of our home seems opprobrious but it dose settle and in the end we have experienced the reality that Gods grace is sufficient and God hasn’t allowed this for our hurt but for His glory! I can’t say this journey for us has been at all easy but it continues to direct us to the grate physician.
Prayerfully,
Scott
Sharing is a Blessing … thank you for sharing your story, your family, and your faith. I know you will keep us posted. And we will keep praying and praising!
This kind of news is never easy ~ I will be keeping you and your son in my prayers as you go through this change and the challenges it may bring. I know it may not seem like it now, but it is possible, in God’s mysterious ways, for amazing blessings to come out of this…..much love to you.❤️
I can imagine how difficult this is for you and your family. Just know that your little guy is going to be okay… My friend Joseph Mure is one of the supporting partners for JDRF (Juvenile Diabetes Research Foundation) and every year for more than ten years he has organized fundraisers that brings in $150,000 -$200,000 to help find a cure. Each year he has a fundraiser cocktail party in NYC where we all go to help support this cause. At Christmastime, about 50 guys in our neighborhood help Joe put up extravagant Christmas light display on his house (called the “Little North Pole”) where people from all over come to see. This display has been on HGTV and makes it on the news every year. You can see my older post on this at http://sheerserendipity2.blogspot.com/2011/12/spectacular-christmas-display-for.html. The first Saturday of December, he has his street officially closed off and have food and entertainment for hundreds of people. He then has Santa Claus come and gives out toys to hundreds of children. Joe and all of us do this in hopes of finding a cure very soon for little guys like yours. Joe and his son are also diabetics.
Marian, I am so proud of you! You are doing so much better than I did in those first few days, believe me! In case you do not know already fifty50 diabetes supply website has the most adorable meter cases and diabetes supply bags for a child your sons age and some of the proceeds go to a good cause ;). My family has also raised funds for jdrf and I think it’s a good way to empower yourself while helping others. Joshua 1:9 prayers being sent your way!
It is so scary when something such as this (especially with our kids) steps into our lives -uninvited at best. Just know…you can do this. And one other thing- I was a nurse for 26 years, and I watched many caregivers (that would be you as a mom) care for everyone else except for themselves. I too was in this category. At the end of the day, though, you must take care of yourself… your mind, body and spirit, so that you then have more to give to your small son and your family. Never forget this. Many years ago, I was in a similar situation, and I was a mess and no matter how much I had done I felt so guilty for not being able to fix the situation, for doing anything for myself, etc. My best friend simply said to me one day.. I absolve you of all guilt- I broke down and cried… but realized I needed that permission to know I was doing all I could and that it was ok to take care of my needs too. God wouldn’t give me something I couldn’t handle. So… I say to you… you have it in you and you have permission to take care of you too. God Bless.
Marian, you always handle life, in all its ups and downs, with such Grace. Nothing is a stumbling block for you, but simply one more challenge to overcome. You have an amazing Strength that most just don’t possess. I will continue to hold you and your sweet family in my thoughts. Blessings to you all
I wanted to share an insight that God gave me years ago. I think sometimes He allows things in our children’s lives just so they will be covered by prayer. I believe He has great things planned for your son and this is part of the equipping process.
His grace is sufficient! I too, was so moved when you posted that your son was diagnosed with Type 1 Diabetes.It brought back a flood of memories. Your more normal in your feelings than you even realize . I have a daughter that was diagnosed a little over 8 years ago, and she is 21 now. Last January my youngest daughter was diagnosed, she was 15. It is true that you go though grieving, almost like a death. I didn’t think that I would have to go through the emotions again, I was overwhelmed when my youngest daughter was diagnosed. There I found myself in the same hospital, similar circumstances, but a different child. However, the Lord has done a hidden work , His mercies are new every morning and He will carry you all. Don’t beat yourself up, I still get emotional, even as I am typing this. I can’t think of the Lord’s mercies and goodness in our lives without getting emotional. May the Lord bless you all. You are in our prayers.
First of all HUGS! Secondly, if you are being cared for by Hershey, you at working with the best. When my parents lived in PA, my mother would drive 2 hours each way every few months to for her regular checkups & care because they were simply the very best and could recognize things that others missed.
Things are overwhelming now but there will be a time (hard to believe) that his diabetes will be a normal part of his life and yours. You will get there 🙂
God is good and faithful and it is wonderful to see how he has worked in your life (especially recently) to prepare you all for this change. What a testament to his love!
It’s DEFINITELY okay to grieve. It doesn’t make you complainy or whiny. You have to grieve the loss of one way of life before you can go onto another. It takes time to let go of the life you thought you would have, and reach out to grasp the new one. It sounds like you are leaps and bounds ahead of schedule. My prayers will continue to be there for you and your family.
Running on grace…AWESOME. Hang tough, sweet girl.
It’s totally o.k. to be emotional; it’s going to take some time to absorb all of this and to get everything under control with the food and the insulin etc. My son is severely disabled with a progressive neurological order and has been hospitalized some 70 plus times so I totally understand the whole hospital thing (I’ve got that down by now, lol.). When my son was three months old, we had to give my son some injections to stop his seizures and I was totally overwhelmed. I had my husband give them to him but the first day they sent supplies to us, they sent us adult syringes and the needles were bigger than his little thigh! I never gave him shots and let my husband do it however we’ve been through a lot over the years and it’s been hard. I am up most nights with my son so I get two full nights sleep a month when my ex-husband takes him. When he was little though, I remember reading a book about what life would be like with a severely mentally disabled child and it scared me to death. I decided not to read those kind of books and instead I have the nicest young man (still severely disabled mentally and physically) that you’d ever meet. It’s hard but doable.
Take care Marion. You can handle this and it’s o.k. to cry along the way sometimes.
Like many who have posted, I am also a Type 1 diabetic. Yes, it is scary and there will be those moments when you feel like you can’t do this – but you will, because this is who God designed your son to be. I would encourage people reading this to realize that diabetes, like so many other chronic conditions, is a disease of the family. It doesn’t mean no one can have sugar… but I can tell you that nothing hurts more than to be told by others that you ‘can’t’ have something, while they make no efforts to accomodate – that is what love is – helping others not to stumble by our own actions – making sacrificial changes for the sake of another. So much has changed in how diabetes is treated – hooray! It is a matter of carb counting and making wise choices. You have made wonderful changes for yourself – all in His preparation of you to care for your son. May He guide you as you establich a new normal. There are many famous diabetics who have the opportunity to heighten awareness and educate the world around them – Halle Berry, Mary Tyler Moore, Nick Jonas, Bret Michaels, Ty Cobb, Ray Allen – so many more! You have a similar platform with your community, church, school and even your business & blog – yes, you could do a fundraiser simply by using your talents and raising awareness at the same time! Whatever you do, may The Lord guide you as you establich a new normal.
I don’t do well with schedules either. This is completely not the same thing as what you’re going through, but my children have fur and four feet… Our little dog has seizures, so we have to give her phenobarbital every 12 hours. I would completely forget if it were not for an app on my droid phone.
You have the strength to get through this. Your little boy just has a new normal. And it sounds like your little boy is accepting this really well, so you’re going to be just fine. Chin up. You’ve already been through the worst of it.
Hugs
I’m new to your blog and just wanted you to know I am praying for each of you! I do know God gives us the grace to carry on and come through the trials of life. He is the one that has EVERYTHING in control when we are placing our trust in Him! May God give you all peace, strength, comfort and healing!
Sounds like the angels have found you, dear lady. What an honest recounting of an unthinkable experience. You will be in my heart as you start this life. And you will be blessed for your open heart and god-like perspective. Keep counting those blessings. And if you forget, just read that marvelous list you just gave us. Wow. Love to you all,
The Other Marian
Blessings to you and your family. God has a plan and though it is hard for us to see sometimes, it will become clear in time. You remain in my prayers.
http://www.mercurynews.com/health/ci_24928868/google-announces-smart-contact-lens-that-monitors-blood
Not yet, but it’s coming!
My daughter was diagnosed a year ago, when she was 7. Your post brought so many of those feelings and emotions back. It’s a steep learning curve, as I’m sure you are figuring out, but I promise, it does become second nature. You can do this! One of the blessings that has come is that my daughter and I have an extra close relationship. She knows we are a team, and it helps her cope. One book that really helped us when she was first diagnosed was “Kids First, Diabetes Second” by Leighann Calentine. She gives great practical advice. Diabetes can feel a little isolating because not many people truly understand what it’s like, so it’s nice to read that and feel like you’re not the only one. I know I’m a total stranger, but if you ever need to reach out, I’d be happy to be a listening ear. I have 2 diabetic mom friends who helped me through, and it made such a difference for me.
I commented earlier in the week, and you will be amazed at how he will manage his care not the disease manage him…my daughter was taught at 13 how she should manage her care, make her food choices so she could have the crap food from time to time…She has a pump that also gives blood sugar levels….in the 17 years since she has been diagnosed thi ngs have become soo much easier….This is a disease one can live with and that is saying alot. .I understand the mourning, the loss of what we thought of a “Normal” life…but at this young age he will be fine…and will be all he knows. It will become his Normal…and that is okay. Thinking of you .
Thinking of you and your family through this time of adjustment.
I had a houseful of company Thanksgiving weekend, but should you ever need a cohort for another Raleigh flea market excursion, I live in Raleigh & would be delighted to accompany you.
Not sure why, because our styles of decorating don’t mesh at all, but, I am a faithful fan. I look forward to your posts every day.
Running on a prayer, a good word or five, lots of help, your faith, your family, your friends and the Grace of God, you will do this ~
Such an encouraging update, thank you for sharing! God does have a wonderful way of preparing us for things, the good and the difficult! I have a great deal of confidence that you all will conquer this!!
Oh, sweet friend. What a strong Mama you are, and what a wonderful testimony of resting in His grace. Praying so fervently for your family today and everyday. Can’t wait to hear your voice next week! love you,
🙂
shaunna
We’re praying for you and your family. God is gracious in preparing so much for you, in making you aware of something different in your son, and in nudging your mom’s suggestion of diabetes.
It’s comforting to know that while much of life surprises us, nothing takes God by surprise! He’s in there with you for the long journey, easy steps and hard. May you always see His fingerprints in even the toughest times.
Praying God gives you the resources and encouragement to take care of yourself, the care giver.
Hugs.
Love your pure honesty and how you wear your heart on your sleeve. Your son is sooo adorable and so fortunate to have such loving parents. I was with my best friend at the hospital when her then 8 year daughter was diagnosed with type 1 diabetes. While I can’t say I understand (only parents who live it daily can) I will say that her daughter has managed her diabetes beautifully and she doesn’t let it define who she is. She has a pink pump that allows her to dance 10 hours a week after school without a problem and lives life to the fullest. She has had no complications and is a beautiful, smart, outgoing 17 year old getting ready to go off to college. Like someone else said, she is very close to her mom as they are a team as you and your son will always be. Wishing all good things and all positive thoughts. You are stronger than you will ever know.,
God watches over all of his children and their mothers. Please don’t forget to take care of yourself also!
Marian, just know that there a resonant prayers and so much love being sent your way. The best thing is not facing a challenge alone, and you have many of us on your team! God’s grace is with us in all things. Love across the miles!
Hi, Marian, I’m a big believer in timing, and God’s timing is incredible. This may sound crazy, but finding out now about T1D when your son is young, will set the wheels in motion for a healthy, accepting lifestyle that can be nurtured as a unique part of him. My oldest also has type 1, and it took a yearandahalf to diagnose (he was in his early 20’s). Within two weeks of his diagnosis he felt so much better; he has a pump, watches his carb intake and is probably the healthiest eater I know.. You’ll all become team members to help support each other; I know it’s overwhelming at first so go with the flow and keep the kleenex handy! My son’s excellent Dr. says that within ten years there ought to be significant changes for T1D (isn’t it interesting how everyone’s heard of type 2, but not type 1???), so there is hope and light at the end of the tunnel. My thoughts and prayers are with you and yours, and I have no doubt you’ll all live through this with flying colors (lots of blues and whites, I’m sure!).
Talk about tears, can’t read this post without welling up. You will be fine, you have the gumption, smarts, and love to do this. You have health care, you have your parents, you have your husband, you have your boys. You have a famous blog and business that will help you to maintain yourSELF and be strong for others. Let the decorating and painting begin! Just think twice about that Restoration horse, not too chippy! Oh well, you deserve to do what you want ~ hee, hee.
Running for awhile in place and running on grace are good things.
Lots of love ~
Hey girl..You got this. You will look back on this moment when he is 15 and think we made it….I can say this because I have a son (now 20) and our last stay in the Hospitial was 51 days 45 spent in ICU. He was born with Spina Bifida has partial kidney failure, sizure disorders and well the list get long and you know, we have made it and we are stronger and more blessed…. GOD is good! HE and You have this!!
God Bless, you are armed with everything you need to keep your son healthy. Thinking of you
Marian, I just turned 54 and was diagnosed with T1 almost 5 years ago. My family and friends were worried sick and are still concerned with my health, but I adjusted quickly and now it’s just part of my life. In fact I was actually feeling quite happy and content while in the hospital just because I felt soooo good not being dehydrated and having to pee all the time! I’m sure you will feel comfortable and normal within a very short time. I would be going through exactly what you are if it were one of my children though and have felt very grateful that I’m only responsible for me and my blood sugar. And as you probably already know, there are so many resources available to help you if needed. From reading your blog I can tell you are a very loving person with a great family and support system and spiritual life. All is well!
Breath…pray…and know that you will feel joy…and free … and big laughter again.
I am sending prayers your way. 🙂
It is always so hard for a momma to see her child have to go through any kind of illness. You did well, Momma! Even in the sobbing. You’ve released the tension, now comes the work. The Lord knows you, all of you, can do this and He is truly at work in your family. May He bless you all with peace and comfort and bless your precious boy with greater health and strength throughout his life.
Thank you for sharing your life and your heart. It is so scary having a child with health issues, I have two daughters that were “blessed” with ailments as well (one has Crohn’s – something you don’t want your child to have, the other at age 25 has had about 8 surgeries for 8 different problems, including a complete hysterectomy – again, not what you want for your child). With God, you WILL find your way through this. I agree, I think you were prepared for this with your own illness. YES, please do grieve. I know it’s not the end of the world, but it IS important and it IS your son. I think the transition to the new normal is easier if you have allowed yourself time to mourn. Your son may have some frustration as well over the years. Praying for all of you!
Marian, Thank you for sharing so much with us. God is truly incredible, isn’t He! I’ll keep praying 🙂
I will be praying for strength and great discernment for you. You are strong and a huge witness. God Bless you and your family.
My 4 year old was diagnosed at 2 years old and so many of your thoughts and feelings resonated with me. In the beginning it seems so unreal unbelievable and you are right life will never be the same but sometimes it makes things in life even sweeter. There will be ups and downs although even now two years later sometimes I still can’t wrap my mind around it. There is a song that really helps me when I am feeling overwhelmed and sad. It is called Blessings by Laura Story. If you ever have any questions please feel free to email me. You and your family will be in my thoughts and prayers.
Sending you and your family all good thoughts and prayers.
You know what, Sweetie? This is just like planning a trip only you thought you were going to Spain, but when the plane landed you found out you were in Italy. Different language, different food /culture than what you had planned for. Turns out both have wondrous outcomes, hi-lites, lo-lites, etc. YOU ALL WILL DO FINE!! Now with that said, CHANGE is always difficult in the beginning. Remember to be gentle with yourself and to take time away for some ‘therapy”– whatever is your thing– a lazy bubble bath, a secret treat just for you, or my favorite, therapeutic E-bay shopping!! Little breaks now and then make tackling life’s challenges a little easier. Remember that God said to love they neighbor as THY SELF!! That’s something we tend to forget– treat yourself well enough so the standard for your neighbor is appropriate!! Praying for you all! W
Thank you for sharing ! We are friends weather we meet in person we are together almost everyday 🙂
So you need to understand we care about you and your little guys too!
Getting to know you personally is how we are inspired by you!
God bless you and your family. Not only are you receiving help for you and your family, you are also encouraging others. Prayers are coming your way and for other children with T1D.
Your little guy sounds like a real trooper. I believe special children are born to special parents, and that God never gives us more than we can handle. Give yourself a mantra to get yourself through the tough days.
The crazy thing about the Internet….we’ve never met, yet I am praying for you and your family as if you are a dear friend. (Thank you for bringing such beauty and creativity to the blog-world every day!) “Because of the LORD’s great love we are not consumed, for his compassions never fail. His mercies are new every morning. Great is your faithfulness.” Lamentations 3:22-23
Marian,
My youngest brother was diagnosed at 15 with Type 1 also. It did change a lot of things with our family. (eating being the biggest thing,), but it also made us all grateful. Grateful for the Lord, His help and just life in general. Now, it will be getting used to “the new norm”. Life, just when we get it where we want it or are comfortable, our precious Savior gives us another reason to TRUST HIM. Be at peace, you are already prepared.
You are such an accomplished and can-do person, and it sounds as if your little boy has many of these traits himself – so I think in a couple of weeks you will have integrated this health inconvenience into your lives and go back to feeling “normal” very soon. I don’t understand why God gives us trials to get through, but I do believe every family has their own trials, whether put their by God, or just the luck of the draw. What really matters is that this (T1D) is not life-threatening if it is handled correctly, and with parents like he has, he will for sure have a marvelous and perfectly normal life – just having to cut out carbs and eating a couple of extra times a day – really no big deal – you will all wonder one day why you were so worried because your lives will soon go back to being wonderful and normal. You are an above normal person with not only great taste and talent, but an unbelievable (I am in awe of what you have accomplished in your young life) self-made entrepreneur. Just work through your emotions and it’s certainly ok and even healthy to cry and yell, and then go back to being the awesome you that you already are! God bless and good luck!! I enjoy your blogs and your Pinterest shares. 🙂
You are right, Marian, about running on grace. As the old adage goes, if G-d brought you to it, He will bring you through it.
I am glad your little one is doing better, and that mom and dad are doing a bit better, too. We will continue keeping you all in our prayers.
Marian…When I read the first article about your son I wanted to leave a comment for you, but I just could not at that time. All those horrible feelings came flooding back. My son was diagnosed with T1D a few years back. I guess I still grieve a littel. When he was in the hospital at Mayo in Rochester, MN I was home for a few days (his father and grandmother were staying with him) I walked by my son’s bedroom and couldn’t stand it so I shut his door. This bothered me so..I thought that I did not want him anymore because of this overwhelming diagnosis. I told this to the doctor and he said it was a natural feeling and that I was mourning the passing of perfect health in my child. That helped me so much and I allowed myself to really grieve. You see my father is also T1D and his diabetes is all over the place with a lot of complications and I had to take care of him from the time I was 7 years old. I know of no other diabetic with his situation so do not worry about your son. I did not want to do this again with one of my own. My son has absolutley NO problems whatsover and lives a great life. It is hard for a mother to accept and we bleed so for our children. They have come along way with things for diabetics. He will manage just fine and believe me his life will be great. I asked God for something to be grateful for about the diabetes and you know what he said to me? Your son will never have to go to war. What a blessing. l come from a very long line of servicemen and women. My brothers, father, mother, grandfather all served. My father received a purple heart. I am not happy that others have to serve and die, but I did find piece that my son would never have to go to war.
However in the end, God did call him to war. He is now a pastor and a warrior for God. He has two children of his own and has adopted four more from China. God is good, but as a mother my heart still has sore spot because of the T1D. I guess that is just being a mother. Things will be fine especially with God. Be well and be encouraged. You are not alone.
Praying for you and your family. May He give you grace day by day as you walk through this. Thanks for being real and sharing your hurts, struggles, and life. You are a blessing. May you all be able to rest and be full of His peace.
H ey Marion! I have been so praying for you ,your little boy, and the rest of your family since you all received the diabetes diagnosis. As I shared with you on the day you posted of your son’s diagnosis ,my son,Austin, received the same diagnosis 17 years ago. It was truly one of the worst days of my life. He was just 6 years old ,just slightly older than your sweet little one. I know how you feel. Just reading of your experience has brought back so many memories. I can so remember feeling like we all had just joined a club I truly did not want to be a member of! Now at the age of 23 Austin has just graduated from college and is doing extremely well.. He now manages his diabetes-not me. However, there are still days I grieve just like it was yesterday. No matter how old they are , they will always be your baby. Just know that as difficult as it is now, it really will become more natural. It’s never fun, but you just get more accustomed to it I suppose. Even now diabetes can be that “unruly child’ that refuses to follow the rules in spite of your very best effort, but you just do the best that you can and just trust God to take care of the rest. It will get better I promise! And remember on the days that it just won,t behave it is okay to cry. I still have my moments this many years later. Again, I am truly so sorry but I will lcontinue to pray for you all as you are on this new journey in your life. If Austin or I can help you in any way we would be so happy to do so. So praying for you all- Adele
Dear Sweet Marion:
Another ‘jellybean” to put in your spirit is this:
God TRUSTS you with this trial.His word says He has already adequately prepared you to deal with this challenge.
Come let us reason together, sweet sister.
Even though it feels like you’ve been hit by a “Mac” truck, and, truthfully, in a way, you have been. You are in shock. You have been blindsided. Do not be deceived. in truth, you have been chosen. Plucked out of your merry way, slapped upside the head (to get your attention). (Anything, that affects our children, oh my stars.) Fact: He is permitting you to really lean on Him. You are His child, sit on His knee, trust the plan He has for your family. He WILL be with you every moment. Just like you trusted Him with your salvation, He WILL BE your salvation in this journey.
Your choice is to walk in that faith or, not. You are being stretched. (Oh, what fun) On the other hand, you are also being blessed. In Him there is rest. He IS in control. He DOES know what he is asking of you. Now, you get to find just where your faith in Him really is. If it is wanting, and being human, it IS wanting, He is permitting you to see that and correct your course. Think how many do not have this security.
Whatever our Lord has in mind for your family, whatever he requires of you, know that you are being brought into a more intimate walk with Him than you had previously. This is a good thing!
Our emotions, while they are given to us by Him, are not what charts the course of our fellowship with Christ. Our choices are. You are being given the choice to follow His plan for your family.
Peace with Him comes by trusting Him (even if we are holding on by our nails) We are trusting Him to help us navigate the journey He has chosen for us. It teaches us to bend, therefore we become more flexible, it teaches us to submit…eeeeeeow that word! which teaches obedience, (Obedience is another word for love) It teach us to relax, we ARE in His hands and He IS trustworthy. He will lead you from darkness into the light.
Be of good cheer dear, sweet Marion, our Lord is near, you are not lost….keep your eyes on Him and get out of the boat, take His hand, let Him lead you. Walk on the water with Him.
He WILL help you focus on Him, if you dive into His word. This is one of the ways to discipline (eeeeeow, another yucky word) our minds so we don’t get lost or wallow in fear. He says we are His sheep and we will respond to his voice. By faithfully staying in His Word, we will better discern His voice from all the other voices that occupy our minds. In the Psalms, He says he will reveal the next step. Then the next step, obedience is the key to being able to receive His directions. When you become confused: seek, ask and knock. The confusion comes from not obeying His direction. Not trusting. Go back and correct your course. It is always your choice.
Be patient, it takes a while for most of us to actually walk in this discipline.
You do not need to be stoic. God can handle our tears, fears, anger and our frailties. Actually, your son is watching you very closely; be who you are. They know us so well anyway. He will see your devotion to the Lord and he will learn the same qualities the Lord is developing in you. Already he is being such an adorable little soldier. You can be proud of your little man. You have taught him well. The Lord is so pleased with you He wants you and your family to walk more deeply, more fully, more victoriously. He wants to reveal His true heart to you and form you into witnesses of His goodness. Do not grow weary. Be steadfast. You were built to face this hand in hand with HIm. No matter what the future holds, everything is gonna be okay.
Holding you up in prayer….♥♥♥
Prayers for your little boy and your family too. The main thing is you found out something was wrong. Now you can fix it and make sure that he stays well. He has a wonderful support team at home. All the very best to you all .
Your honesty & depth of feeling shine through your fears, grief & sorrow–you will prevail with all your support systems; how can you not? Your fans, friends, church members, family and prayers lift your family up every hour into grace. You all will make it & you all so deserve to. Bless your son & each of you. I so appreciate your sharing of the real.
Prayers for you and your family. I understand your feelings: my husband was diagnosed with colon cancer on January 4th. I know that the only thing that has kept us going is the prayers that have been said in our name. It sounds as if your son is adjusting very well to his new life, and so are you! Just keep on keeping on and the whole regimen will just keep getting easier.
I have been in a situation that turned my world completely upside down, a serious health issue with my mother. I was totally alone with it and It was so overwhelming I was a complete and utter mess but God helped me through it day by day, never giving me more than I could cope with. When I started to analyse the situation or look ahead the overwhelming feelings would come flooding back. For me it was about remembering not to do that, not to think, what if or what will be but to take each day as it came.
I became a stronger person, it brought me closer to my family and gave me the loving relationship I should have with my mother. Before her diagnosis we were very detached from each other and had a strained relationship. Her illness changed both of us and suddenly what was important in life was so clearly seen. Through this very difficult time God brought the most amazing people into my life and my mothers who helped lighten this huge burden.
Your son will continue to be the little boy he was, there will be extra things you have to deal with such as his daily shots, but through prayer and the strength God gives us he will thrive and grow and you as a family will thrive and grow with him…..Remember Marian, ‘one day at a time’ hand it all to the Lord.
Lee x
Much love and many prayers to you and your family!!!
Marian,
Your outlook on things is so encouraging. It has been a trying week for me, to say the least, but I can see where God works all things for good. Thank you for another reminder of that. I am preparing to leave the country to teach at woman’s conference (gulp) and due to some events in my life the last few weeks I am teaching on suffering. Thank you for some more inspiration on the topic and how God uses it to prepare us and comfort others.
Have a beautiful weekend!
Thank you for sharing your story. Your little boy will do well because he has great parents. Never underestimate yourself. You’ll learn to adjust and question whether you’re doing things the right way. This is all normal. And yes, it’s okay to cry. Eventually you will look back on this day(s) and appreciate how well you managed. Bless you and your family.
Thinking of you…..
I won’t add to your emotional roller-coaster, but just wanted to say that you and your family are in my thoughts. Years ago, I had a temp job in a children’s hospital, and one of the people I provided secretarial support for was the Diabetes Educator. I learned a lot by osmosis, but I think a lot of progress has been made since then. You have a great attitude, and I think your boy will be fine.
Prayers for you and your family, and may you continue to feel the blessings and peace that only God can give.
Thank you for sharing. You’re little guy is so sweet. I just saw on the Today Show a little thing that kind of looks like a contact lense. It is being used instead of “pin pricks.” Not sure if it’s on the market yet.
Keeping you and your family in my thoughts.
Kimberly
Thank you for sharing your family’s story. I am glad your little man is settling in to his new way of life. It will be a challenge but I am sure your family is up to the task. God Bless all of you and I will keep you in my prayers.
Karen
We’re studying job in our Adult S.S. class, God allowed him to have trials and testings, but never once brought them on Him. Job never cursed God, in the end everything was restored. God received all the glory, I read you are doing the same thing. I continue to pray to a Holy God who cares about His “kids” adult or child.
I know it isn’t a disability per se, but I feel you merit a welcome badge. Welcome to Holland my dear friend! You may understand why my decor will be all “Holland Themed” in my family room (in all honesty) and why the tulip and Dandelion (another day for this one) are my two favorite flowers… Welcome to Holland Marion! From someone who has been in Holland since 12-27-95
WELCOME TO HOLLAND A Beautiful Poem Written by Emily Perl Kingsley
Emily Perl Kingsley writes I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this…
When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guidebooks and make your wonderful plans. The Coliseum, the Michelangelo David, the gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland.”
“Holland?!” you say. “What do you mean, Holland?” I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.
But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.
The important thing is that they haven’t taken you to some horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.
So you must go out and buy a new guidebook. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It’s just a different place. It’s slower paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around, and you begin to notice that Holland has windmills, Holland has tulips, Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy, and they’re all bragging about what a wonderful time they had there. And for the rest of your life you will say, “Yes, that’s where I was supposed to go. That’s what I had planned.”
The pain of that will never, ever, go away, because the loss of that dream is a very significant loss.
But if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things about Holland.
Dear Sue:
Love, love, love this parable. I have never heard it before but I will never forget it! What a wonderful way to express change. Thank you for sharing♥♥♥
God is Sovereign and He gives Grace abundantly. You are in my prayers, my friend.
Xoxo
Tami
Marian: Have you and your little boy and family in my prayers
I’ve been through the dark days after diagnosis and grieving is part of it. Do not pass this step. Your grief for your previous life and the loss of “it won’t happen to my family” is real. If you don’t grieve it will come back to you, multiplied. Rest on God & each other….and the knowledge that your tribe (a great host of witnesses!) are praying for you.
Thank-you for sharing such a personal experience with us. God bless you and your family.
Another thing I forgot to mention is we are in Denver and we used to go to the highly respectable Barbara Davis Center. They wrote and published these books :http://www.childrensdiabetesfoundation.org/facts-resources/cdf-publications/publications/ . Check them out if you are not too overwhelmed right now with reading . Mourning is ok to do. We have a right to do it & It helps us process all that we are challenged with but also gives us hope (along with God
My 10 yr old daughter was diagnosed with T1D in May. We too go to the Barbara Davis Center and I credit them with our successful navigation through this new life. We just attended the advanced pump training on Thursday and it always feels like we’re walking into a family reunion when we get there. Between Kelly’s warm smile, Tavia’s “Hey girlfriend”, Lois and her gum, Dr. Maahs’ expertise and so many others, we feel truly supported. Knowing that so many understand what it feels like to either have diabetes or have a child with diabetes means so much! Nobody is alone in this!
Another thing I forgot to mention is we are in Denver and we used to go to the highly respectable Barbara Davis Center. They wrote and published these books :http://www.childrensdiabetesfoundation.org/facts-resources/cdf-publications/publications/ . Check them out if you are not too overwhelmed right now with reading . Mourning is ok to do. We have a right to do it & It helps us process all that we are challenged with but also gives us hope (along with God
Another thing I forgot to mention is we are in Denver and we used to go to the highly respectable Barbara Davis Center. They wrote and published these books :http://www.childrensdiabetesfoundation.org/facts-resources/cdf-publications/publications/ . Check them out if you are not too overwhelmed right now with reading . Mourning is ok to do. We have a right to do it & It helps us process all that we are challenged with but also gives us hope (along with God
just got home from 5:00 Mass and read your posting. Made me cry!
God is Great. God is Good. Praise Him for our many gifts.
So many advances in medicine today that will help you care for your son. Sending positive, healing thoughts to you and your family to give you and yours the strength to forge through all these new challenges you are facing. What is it they say? “God never gives you more than you can handle, He is with you!”
Marion and Jeff,
My heart goes out to both of you and may God give you the strength that you will need through this journey of managing your beautiful son’s diabetes. I am a pediatric certified diabetes educator (CDE) at Loyola University Medical Center, just west of Chicago, IL . I meet with the parents to teach them how to transition safely to their homes after their child is first diagnosed. Also, I get to see them with the Ped Endo in the out-patient office and have come to know so many of our patients and their families over the years. As I read your blog I couldn’t help but admire how you saw that God had prepared you and how there have already been so many blessings and answers to prayers. We have patients with diabetes that range in age of 11 months to 18 years and I have seen emotions swing from each side of the pendulum. I try to learn from each of my patients and I thank you for sharing your emotions/feelings. The makers of LANTUS insulin made a DVD that speaks of the emotions. I have some extra copies if you would like I can send it to you.
Children never cease to amaze me and how resilient they are. The positive emotions that you and Jeff have will have a beneficial effect on your son. You will see how your son will be able to manage his diabetes while still playing with his Legos or running around at the park with his brother.
If you are ever in the Chicago area, I would like to invite your son to attend a SLAM DUNK basketball camp for kids with diabetes. There is no fee for the child with diabetes (either Type 1 or Type 2) to attend. We work with the children to show them how they can play basketball all morning and safely control their blood glucose levels. The coaches are awesome and parents are welcomed to stay if they would like. Check out the website: http://www.slamdunkkids.net
SLAM DUNK is not well knows, although last year Dominique Wilkins, Hall of fame NBA player did come to meet the kids, take picture and sign autographs. I’ve volunteered at the camps since 2009 and feel strongly that magic does occur on the courts of SLAM DUNK. All of the kids have diabetes and all of the kids are checking their blood sugars. The kids will talk to each other about their insulin pumps, or supply carrying cases, what fast acting carbs they take when their glucose is low, etc. It’s amazing to be with the kids at SLAM DUNK camp.
If I can be of any help to you and your family please email me and let me know. Teresa
So glad you are home. Praying for all of you.
You are precious in His sight.
Rest! And laugh and cry and breathe! He will see you thru.
Praying God will continue to comfort you and show you all the things you can do through Him! He is able to do exceedingly, abundantly, beyond beyond what we can ask or imagine, according to HIS power at work in you (that power that raised His Son from the dead is at work in you). Rest in Him, Sweet Sister.
God’s timing is perfect. He had this all worked out (your job, your husband’s insurance, your parents’ move) before you ever knew about your son’s T1D. Aren’t we all so blessed to have him as our Father? Hugs to you and your family. Take care of yourself while you take care of your family. LC
MMS I know a little girl that lives around the corner from us. Her name is Rachel. She is 11 years old right now. We have known Rachel for 8 years and like your son she was diagnosis with the same condition at a very young age. I have watched Rachel through the years and I have got to say I really admire Rachel. Rachel has taken control of her life. She is educated and knows her body. She enjoys being a kid but is very mature when it comes to taking care of herself. Your son will be just fine. God is good and he has blessed you and will continue to do so. Your son will show you things that will amaze you and teach you more than you could ever image. Stay blessed little mustard seed.
Marian…you can do this & your son will help you through…Kids are so good at that. My prayers are with you and your sweet little boy.
I have one word to say.AMEN
Oh Marion. It’s good to hear that your son is receptive to the treatment-that is totally God! His grace is sufficient. You are in my prayers and in His continual love.
Hi Marian, I don’t know if this info will be of any use to you but here it is. You might want to look into milling your own grain for making y’alls bread, rolls, etc. I have a friend who is diabetic and started milling all their grain and baking their bread, etc and has been able to go off of the insulin injections completely. The freshly milled grain doesn’t raise your blood sugar like regular flour does. If you want more info that is fairly in depth, check out http://www.breadbeckers.com You can order a couple of free informational cds. Just thought I would throw that out there. Have a blessed evening.
God bless,
Robin
I will be praying for your family. Trust in Him.
Marian,
We have been at the edge knocking on Heavens door with two of our children and then myself- quite simply I am here to say; He never gives you more then you can handle for that particular day. He will surround you with warriors/angels disguised as humans. Our children are stronger then we are. Your faith will grow, your relationship with your husband will be stronger- you will never look at your son the same, but you will see him in a light brighter then you thought possible. In the end, life will have more purpose. Just When you thought you had it figured out, He will show you YOU are capable of so much more!
You go girl!
Megan W
I have been in your shoes,actually we still are. My 15 year old daughter was diagnosed 1 1/2 years ago. A good information source is http://www.childrenwithdiabetes.org. go to the forum. Lots of us parents there with good advice. Your life will seem overwhelming for awhile. Then one-day it will dawn on you that you are no longer overwhelmed. It takes time. But it will come.
God bless you and your family and may he keep you and comfort you with his never ending love.
Your blog is precious. I’m praying for your family and for all the lives you are touching through your tender heart sharing. You are a Blessing. God has great plans for you all. I praise The Lord for you and the gift you have for sharing. Also, I thank The Lord for your talents. Thank you for sharing.
In Christ’s love,
Darlene
tears both for your situation and for the courage of your little man, My daughter got so used to having her blood taken she would just stick her arm out for the blood person…it made me so sad she should have been crying but to her was a part of life like brushing her teeth.
best to you all,
Jeanne
God bless your sweet family. He will never fail you.
God bless you and your family, Marian. You’re in our prayers.
I so love reading your blog and I appreciate how you have shared this difficult situation. I am a breast cancer survivor and I know how hard it is to deal with a big diagnosis. You have to allow yourself to feel all the emotions as they come. You learn to live with a new normal in your life. Your sweet little boy has a long, happy life ahead. I have diabetes in my family and it is just another bump in the road of life. Having survived my breast cancer I can now appreciate every day in a whole new light. There are blessings to be found in crises. You will have a new lens to look at life with. Each day is a gift and the secret to a happy life is in that knowledge. Hugs to you <3
Continuing to pray for you all!!!!!! ” I can do ALL things through Christ Who strengthens me”,,,
Thinking of you and praying for you, you’re sweet boy and family. You’re such a great mom! I pray that The Lord will comfort you with his love. I’m also a mother of two children and by leading our children in The Lord, we’re doing the greatest thing. No matter the struggles we face, we belong to him. He brings peace, love and joy in our hearts. God Bless
Every day will get easier. You will get through this because you love your son, because you have the support and love of your family, friends and loyal readers. I will keep you in my thoughts and prayers.
Prayers have been flowing for your son, you and your family. Thank you for providing the update and letting us know how we can specifically pray for you. I have always believed in the power of prayers, but a stage 4 cancer diagnosis helped me to really really understand how powerful the act is. I wanted to share an idea with you. A sweet cousin of mine has been dealing with type 1 diabetes diagnosis with her little guy too. She quickly searched out a “Diabetes service dog” , (her name is Blessing) and she really lives up to her name. In the night while the family is sleeping, her sons blood sugar levels will drop or rise and this dog has been trained to somehow detect the change and she begins to bark and goes to get the parents. Blessing sleeps with her son every night and they cannot imagine life without her. They receive a peace of mind that she says they wouldn’t have otherwise. Just a thought to share. Peace be with you, your lil feller, and family.
God truly does work in wondrous ways. I’ll be praying for you as you go through this “learning” process!
Marion and Jeff, You are all in my prayers. You’ve been through so much this week. Do take time to grieve. It can’t be easy but God is with you. Your little one sounds amazing. Thank you for sharing your story. It has touched my heart so.
Marian,
The ways God has been preparing you gave me chills and touched me to my core. What a comfort…… Hugs
Melissa
So good to hear that your son is taking it all in stride. Keeping your family in my prayers:)
I will keep your family in my prayers. Stay strong!
I’m so happy to hear your son is doing well, and you are adjusting- My story is that I was a type 2 diabetic -had chronic pranceatitis, and had to have my pancreas,spleen,gall bladder,and lower part of my stomach removed, now I’m a type 1 – trying too deal
Fear of the unknown and unfamiliar can be paralyzing. God will show up with skin on through the many angels that will help you work it through. Thank you for reaching out through your story. You and your family are in my prayers.
Love and prayers from Philly!
I know you don’t need directions from us right now on how to plan for all. But I do see a really strong young man in those pics and feel he is going to surprise you with strength, commitment and a full life. Hold strong, even knowing this will weaken any mom within their heart. I agree to let any feelings of grief evolve and heal yourself too. Any one of us would feel as you do knowing the impact on our precious child.
Your post is so “from the heart”. All of your emotions are to be expected and, of course, you are allowed to go through the grieving process. It is a healthy and needed process. You will come out the “other side” of grief a stronger and more determined Mom than ever.
The strength of a woman is not measured by the muscles in her arms or legs, it is measured by the size of her heart…you are stronger than you think. And that strength allows for moments of pity, moments of doubt, moments of sadness. But they are just moments and will not define you.
Your son shows strength too in so many ways. Your family is blessed.
I am a Certified School Nurse and have worked with diabetic children in the school setting for many years. All your fears, concerns, for him to be at school are overwhelming right now.
Talk to your nurse at school and don’t be afraid of being a “helicopter mom” in the beginning. As time passes you and your husband will watch your son and family accept your “New Normal” and watch your son thrive and grow!!
I wish I was your School Nurse!!! Prayers and Love to you and your family.
Mary Jane
Don’t worry God takes care of everything! Just have faith.
I can totally relate to your loss emotion. Mt son was diagnosed as juvenile myoclonic epilepsy when he was 15! The fears and grief are overwhelming. He is 28 now and I still have a hard time not knowing if he is taking care of himself. But then I remember all I can do is depend on Gods plan and worrying won’t do me a bit of good. Cry and talk and vent. You will become an expert at all of this, and as a children’s pastors wife you will have so much to help other moms with. Wow!
As soon as I read this I started praying for you! I so wanted to contact you but we were out of town and had limited time as we were spending time with our eldest. We will continue to keep you all in prayer as you undertake this journey.
I came to your website for your slipcovers instructions and just started nosing around and found I liked what I saw! I signed up right away, but on my quest I noticed your blog regarding your son. I looked at his sweet face and immediately saw my grandson (only with glasses). This is my second grandson out of three grandsons, one granddaughter and another granddaughter due in June.
This grandson was a preemie and had some difficulties in his first three years of life, hence the glasses and other problems. By no means what you are dealing with, but still when you see their bright little faces and know what they are going through it just breaks your heart. I immediately felt your sorrow because of what Killian is going through and he is has much improved since he first came into this world.
Having the blog is probably a good way for you to express what you are feeling and of course you are entitled to be selfish at times and breakdown once in awhile. It is a heavy load for a mother to handle besides caring for another child, etc. I cannot imagine what is going through your head every day and I am thankful every day that my grandkids are healthy and happy,well happy, most of the time. 😉
It seems you have an abundance of support from family, and friends on your blog. Don’t be afraid to take advantage of that help that is offered to you and I’m sure your son will grow up to be a healthy and happy young man.
I don’t know if you are aware but, Mary Tyler Moore is a Type I diabetic and she is now in her 70s. There may not be a cure, but people are living to a ripe old age with this disease.
Take care and love is sent your way!
MJ
Hi, I wanted to let you know that I am the mom of 3 boys/men, ages 28, 24 & 16. My 24 year old son was diagnosed with Type 1 at the age of 12. He has now lived with diabetes for half of his life. He is a healthy, happy, young man. He played baseball for 4 years in college, graduated, and has gone on to a wonderful job working for IBM in Atlanta, GA. He has not slowed down one bit since his diagnosis. He does not care for people who call him “a diabetic”. He says diabetes does NOT define him. He refers to himself a baseball playing, fly-fishing, lover of life person with diabetes.
I know this is difficult, I had many moments of crying jags and prayers for strength. Finally, my 12 year old had to tell me….”Mom, this isn’t about you.” He was right. You can do this. It’s what we do, as moms. My prayers are with you. Don’t be overwhelmed. Be there for your son and for your family, as well as for yourself. Remember Jeremiah 29:11 ~ “For I know the plans I have for you, plans to prosper you and not to harm you, plans to give you hope and a future.”
Please let me know if you ever need to talk. I’d be happy to. ~ C. Jayne
Marian…my daughter’s friend was diagnosed with Type 1 when they were in pre-school. Not going to lie…it was a hard when she was little, until she could figure out what she was feeling. But as soon as she did it became much easier. I think God gives these challenges to special children…it was amazing to me how she tested herself. I can remember going over to see her when she got home from the hospital and she showed us how she “made herself bleed” and then to have the shots everyday…without complaining. Amazing hand of God! She played soccer from youth soccer through high school. Now is married and is a lawyer. God is good Marian…us moms just need to put our trust in Him. Your son was His son first and He will take care of him. God bless your little guy, you and your family. You are a great Mom just the one God wanted for your son…you will be amazing!!
Praying for your family as you adjust to all the changes and challenges. Stay positive and know that God has your back. Remember God will not test us above what we are able. Thanks for sharing and know that many care for your family.
I’m glad you are able to share and get the support your family deserves right now. You are in our hearts and prayers. don’t forget to take care of yourself too! big hugs to you.
Wow!! Brings tears to my eyes to read your story, but at the same time seeing God’s grace and strength as you walk through this difficult time is just so comforting and amazing!!
Blessings and grace to you dear blog friend !!
Hugs and continued prayers to you. Your post has lifted me up, and your description of your baby eating graham crackers and drinking OJ while God was saying, “I’m here. I’ve Got this,” brought tears to my eyes. Yes, He is always with us, and He always answers our prayers. Sometimes we forget, especially when the answer to a prayer is no, or we find ourselves facing challenging times. May your faith continue to bring you strength and comfort, and may peace be with you always.
So sorry to hear this. I have been doing a lot of health research for my little girls medical problem. Just wanted to let you know that gallbladder and T1D are both linked to gluten intolerance. In fact a recent study on pubmed showed a young boy with T1D who went into complete remission upon adoption of a gluten free diet. If I can find the link I will add it but please research this link on your own. Doctors had no answers to my child’s problem but I was able to find the solution through my own research . I thank god that I did because I don’t believe the doctors would have ever made the connection between her various symptoms
please do you research – gluten free diets do not reverse Type 1 diabetes. If it did I would know 1000s of T1 children and adults that were already cured
The study is available for all to see on pubmed. The links between gallbladder removal and gluten intolerance is established. We know that most cases of T1D occur in children eating western diets. This medical problem is unheard of in many parts of the world. Of course more research is needed to prove beyond a doubt anything. I believe if there is a chance it will help which this study showed is possible why wouldn’t you try it. There is no downside to removing wheat from the diet and replacing it with more nutrient dense foods. Our entire family has experienced improved health since removing gluten to accommodate our daughters condition. I always hesitate to mention this to adults because of negative reactions like this but when a child is involved I am willing to put myself out there for them. This is coming from a place of love from someone who has spent at least 5hrs a week researching original medical studies over the last year. I don’t take this lightly but felt I had to mention this to Marian. If she was my friend in real life I would have done the same
Dear Marian,
Just wanted you to add me to the list of prayer warriors for you and your family!
I will be “Storming the Gates of Heaven for each of you!”…..Corrie Ten Boome
Barbara Haisten
Wow, just wow. Praise God for His grace!! As I wrote on the last post, God’s got this, and you have supported that in this post!! Thank you for laying out how God had prepared y’all for this diagnosis. Wow (again)–all the things that had occurred before this even happened! And thank you for seeing His hand in your lives and writing about it. So many get caught up in the negative aspects (not that it isn’t pretty natural to do) and I believe that’s when we go under. There is always something wonderful and God-given in the midst of tragedy or hardship. We have to seek it out really hard sometimes, but it’s there.
My daughter is on a feeding tube and now is receiving growth hormones. At first doing those things were so difficult. But as time goes on it becomes routine and she is even doing it all herself. (she is 13 now) Your life will, of course, be different, but soon it won’t feel as invasive. God’s blessings on you, and may He use this to help others. For sure you have a huge platform here, sweetie. Hugs
Hey there…So sorry to hear about your son’s diagnosis. My daughter was diagnosed with T1D about 4 years ago, at her 5th birthday. It will get easier as you continue to adjust. Your son sounds like he is handling it wonderfully…what a blessing! It is totally okay to grieve. I was a mess of emotions at first, but then life goes on and you all find your new normal.
Praying for you…
Elise
Marian, I am praying for you and your sweet family across the miles. I can see that the Lord and His grace are carrying you through. Praising Him this morning for His love and care that is so sweet and tender!. Love, Robbie
Keep up the positive energy! Knowledge is key and it sounds like your family had gotten the right information. You are someone special, who can obviously handle many things at once, and I’m sure after a little time has passed, this new situation will become routine. We are pulling for you and your little guy!
My husband is type 2 and we have been on this journey for about 7 years now.
I wanted to just give you a couple of food sites that will help!
this one is low carb: http://www.lowcarbluxury.com/lowcarb-recipes.html
this one is all natural site that I think you will appreciate!: http://chocolatecoveredkatie.com/
God Bless you and your lovely family!
Psalm 56:3
So thankful for grace and a God who really does take care of us. Praying for the dark days to be few and far between!
check out this FB group – it is closed group so all your posts are private to the group only – I think you will enjoy the resources and parents in this group. My son was diagnosed at age 4 (he is now 10) and my husband at age 12 (he is now 40) – you will be a great D-momma. I am sorry that you joined the club but there is amazing support out there to help you through this.
https://www.facebook.com/groups/parentsofchildrenwithtype1diabetes/
What strength you all have shown, and what a marvelous little man. How is his brother doing with all the attention focused elsewhere? Good for you for letting yourself grieve. It is a big change and the emotions are real.
Thank you so much for sharing your incredibly personal story. Everything you write is straight from the heart and while I have not met you personally, I feel we have been old friends for a long, long time. I have TYPE 2 diabetes and it is a challenge on a daily basis to do what is right for my body. Please know that while you are personally gong through this…we (all of your avid followers) are here to listen to you should you need to vent. If I lived closer, I’d bring over a casserole on the nights when you are so busy or emotionally drained/exhausted and feel you can’t go on. Please continue to blog about this if you feel you need to vent. Many of us have similar situations/emotions and it is good for the soul to know we are not alone as well when it comes to trudging through life with challenges. As my mother used to say…There is strength in numbers….hang in there. <3
Marian, your faith is inspiring! We all have trials but are never given anything we can’t handle and it sounds like your son already has a great attitude about what’s happening. What a trooper! Hang in there and know that I have been so touched by your story along with thousands of others and will be praying for you and your sweet family.
Love the blog, and all the projects, I am praying for you and your family to continue to handle these challenges with grace. My sister boyfriend son, only 5 also, was diagnosed with T2D (imagine that) in Nov, it does feel isolating, and devastating, but I researched online how there are groups, organizations,camps and even a pet organization that helps the kids to cope. I live in NYC and there are not a lot events here or awareness yet, some in NJ where they live but not close enough to attend easily. I will follow your blog and updates, because I have a feeling soon enough you will be branching out into these types of family events, and when you do, I will drive to PA to attend..it seems these days that there are 6 degrees of separation with a diabetic person, either a child, or an adult in your family. When its children this young, it does break your heart…but I think that you have a great outlook and support system, that like the projects and the business you will find a creative way to deal with this and incorporate it into your life. Ill check back more to hear all about the updates. Be well
I totally feel for you. My oldest son was diagnosed with this back in April… We are still on this journey of learning what works and what doesn’t but God has been with us every step of the way! Prayers for your family and hugs for your boy!!!
one day at a time. Their is a reason for this line. So very true. I don’t discuss on FB nor on my blog. My son was born with a rare birth defect. easiest way for a person to understand is think if your bodies hormone system did not work at all A complete non functioning of his endrocine system. You will learn so much and your live will change, but you will be stronger for it as will your son. one day at a time
Goodness, I left a trite little comment for you yesterday about plates because I was catching up going from oldest to newest. Switched directions today & saw your news! Our daughter had a seizure from high fever due to a bladder reflux problem when she was about 6 and was on meds for years. It is so very scary to see your child in a hospital but it sounds like once again our God is there for you & you know that. Your boy is amazing and you will be too. Just keep doing what you are doing. Bless you all.
Both of my brothers were diagnosed, way back in the 60’s with juvenile (what we used to call it) diabetes. As were a couple cousins. It was a different thing back then. So many wonderful advances have been made since then. When my sisters daughter was diagnosed in the 90’s it was a different story all together. But I do remember the fear and the tears. I am glad you gave yourself the chance to grieve. And now you will give yourself the chance to grow and learn and teach. Though your blog is about furniture and design it has always been about faith also. So many are praying for you, before this and now. God is with you, as you know, loving your son, loving your family, loving you.
Marian, you were chosen for such a time as this… You glorify
God in your blog that reaches so many. You honor Him by
trusting in Him and sharing your faith with us. Through your
writings we see your love for your savior, your family
and your passions. Please don’t ever hesitate sharing your
feelings with this wonderful group. We are hear with an ear to
hear and prayers to cover you when you need them. Take
care of that sweet baby and know that you and he are blessed
and highly favored and never alone.
Blessings to you and your family. This can be a shock, and you feel like you are suddenly boxed in by medicines, demands, schedules, etc. Take a deep breath, know that God is in control, and bless the fact that you and yours are living in the 21st century. Society takes so much for granted, but we really do live in the days of every day miracles. I am a pharmacy tech, and I can tell you that children and adults are living healthy, normal, and outstanding lives being diabetic. It will make you, your husband, and children more aware of your bodies and your eating habits-a good thing indeed. The people that I see that are healthy; have adhered to a schedule that reinforces their strength and “normalcy”. It can be done.
No worries! 🙂
Bless you! It is wonderful to see God’s hands in things, he truly loves his children. I am glad to hear things are good, and I would have totally sobbed when I found the pen wasn’t in the bag, and countless other times! You will be in my prayers! You son is adorable, what a trooper!
Thank you for this beautiful post. I can totally relate, as my 6-year-old son was diagnosed in October. The rush to the hospital and the crash course in diabetes was totally overwhelming. I felt like no one ever sat me down and said, “I need to tell you something that is going to change your life. your child has a chronic illness that has no cure.” they just immediately started telling me about insulin and carb counting, etc. It was very emotional and difficult. We are doing okay now, just starting to come out of the fog of the first few months. Reaching out to others has helped a lot, despite the fact that in the beginning I just wanted to deal with it on my own. Hang in there…blessings to your family! XO
You’ve got this, girl. I can understand all of the feelings you just shared. Our son was diagnosed almost five years ago just before his tenth birthday. He has handled it like a champ, just like it sounds like your son is doing. It really is harder on the parents, I think. Our son is amazing at handling this. He says he knows he can’t do anything about his diagnosis, so there is no reason to get mad about it. He is an amazing big brother, a great student, a super athlete, etc. Nothing can stop these kids.
Some days are just rough. When he has lows, you feel like you’re going to lose it. When he has highs, you worry about his future. This just comes with the territory, unfortunately. You can do this. He has great parents that will take on this new diagnosis as it becomes a family diagnosis.
And, PLEASE, don’t believe people when they say you can reverse this. You’re going to hear all kinds of “advice” and, “My grandpa has diabetes.” TOTALLY NOT THE SAME THING. Blessings to you all.
Praying for you, Marian! Dealing with a chronic illness, especially a child’s chronic illness, is tough, but God will use it to refine you and to bring glory to himself.
My husband has T1D. My mother-in-law still struggles with guilt over this. I’m praying that God will be a comfort your family and that you will fight for joy on the difficult days.
On a practical note, being on a mostly Paleo diet has really helped control my husband’s blood sugar. I would imagine any high protein and low carb diet would help. Protein is your best friend in stabilizing blood glucose.
Once you get the hang of things, Insulin pumps and continuous glucose monitors are super helpful in managing T1D. Sixuntilme.com is a really good diabetes blog if you haven’t discovered it already.
I have heard someone say ” Make your mess your message”. You have already done this, have gotten so much support, and you will help someone dealing with the same issue another day. You will do what must be done because you are a mother and that’s just what we do. It is wonderful that your son is adapting so well. Such a growing time for him as he strives to make things easier for you. What a great little man! Thank you for sharing and you have my prayers as you navigate your new normal.
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